Strength – POTS Syndrome Awareness

Strength. It’s been some time since I have had a POTS (Postural orthostatic tachycardia syndrome) attack. Yesterday evening I was hit with one. It came on so suddenly & without any warning. I was lying on my bed feeling 100% normal & then the symptoms hit. I immediately became nauseas, dizzy, my head felt as if it was going to explode, pressure/sharp pain in my eyes, my heart began to beat rapidly & the feeling I was going to faint. Instinctually, after having so many of these attacks in my life, I went into “here we go, let’s get through this” mode. I raised my head onto a pillow along with resting my feet against the wall above my head to help regulate my blood pressure, which I knew was dropping fast. I could feel myself getting worse & moved myself to the bathroom floor with the necessary supplies. With an attack you really don’t know what will happen. Toilet lid up & ready for the case of vomiting. Pants & underwear down in case of diarrhea. Ben next to the toilet in case of both. Laying on the ground in case of passing out. A blanket for the expected change in body temperature. Water to sip while the inside of the mouth becomes like cotton. I spent a good amount of time just laying on the bathroom floor waiting for the attack to end. My attacks have a bit of a flow to them where I know the stages of where I’m at in the attack. The stomach upset, dizziness, head/eye pain, the feeling of going to pass out. It can go in two directions. First direction is passing out followed by diarrhea or vomiting. The second direction, which occurred yesterday evening, is my body going into a case of uncontrollable body shakes. It’s not a seizure but the shakes are very intense & jerky. Followed by the shakes my body’s temperature drops. I become extremely cold, which is why I brought a blanket in the bathroom with me. Eventually my body functions begin to regulate & I’m able to stand/walk again. Once reaching this point I get some food with plenty of salt (pretzels are my food of choice with attacks) & flask of water to increase blood volume. It doesn’t matter how many times one of these attacks occur it’s always scary AF. Love to my fellow warriors #potssyndrome

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