Life is a journey 🌻
My tenth surgery in six years is on Tuesday. I’m slowly starting to come to terms with the fact that I have to have a surgery every year to treat my interstitial cystitis (IC), chronic painful bladder syndrome until there is a new treatment that helps my kind of IC. I’m within the 5-10% of IC patients who has the reoccurring lesions / ulcers. It’s a bit of a hard pill for me to swallow but I’m thankful that that this type of surgery does help treat my bladder condition.
I thought this would be a good time to share my journey for those who do not know it.
Six years I became very sick. It started with a large ovarian cyst rupturing & leaving its liquid in my body for a month while another large cyst was hiding behind my right ovary as it twisted my ovarian tubes making blood flow difficult. This went untreated for a month because my general doctors said it was constipation. I eventually ended up in the ER where I was then sent to my leading doctor who immediately scheduled me for a laparoscopy surgery where he removed the complications from the cysts along with removing endometriosis on my uterus. I was bedridden for over a month. Two months later I ended up in the ER for another rupturing cyst. Over the next couple months I kept getting sicker. My lead doctor did another laparoscopy to discover more endometriosis & my appendix rotting. By this time my pelvic pain was unbearable. I begged my doctor for a hysterectomy but he refused (thankfully). Instead to treat my severe overactive hormones, endometriosis, cyst complications, & severe pelvic pain we shut my periods down & placed me a chemically induced menopause state for 5 years with Lupron injections. But my severe pelvic pain continued. That’s when we discovered I had IC. My pain & symptoms were so severe that I lost 40 pounds in a couple months. If you take a look at this picture would you believe that this girl has fought to gain 20 of those pounds back? Take away those 20 pounds & that is where I was at. I could barely walk. My mom helped me bathe. My dad would carry me. My life was spent crumbled in bed in severe pain. I was disabled.
More of my journey to come 🌻