IC may have shaped my life & me but it does not define me

Thank you all for your incredible love & support you have given. It really means so very much to me. I am truly thankful to have a community of people all around the world that helps me feel safe as I share my journey 🙏💚 #InterstitialCystitisAwareness ⁣

My recovery from the cystoscopy / hydrodistention surgery is going well. My bladder has had fleeting moments of striking pain. Peeing is also pretty painful. But this is my 6th time having this done so I know these symptoms will eventually pass ☺️ I can’t wait for the anesthesia, antibiotics, & pain meds get out of my system too – I’m such a lightweight lol. Until then I’m resting in bed, light stretching & taking very short walks around the house. ⁣

Interstitial cystitis (IC) is a bladder condition that usually consists of multiple symptoms. Most IC patients have recurring pelvic pain, pressure, or discomfort in the bladder and pelvic region, and urinary frequency (needing to go often) and urgency (feeling a strong need to go).⁣

IC may also be referred to as painful bladder syndrome (PBS), bladder pain syndrome (BPS), and chronic pelvic pain.⁣

There is non-ulcerative IC – 90% of patients have and ulcerative IC – 5 to 10% of patients have, including myself. Ulcerative: 5 to 10% of IC patients have the ulcerative form of IC. These patients usually have Hunner’s ulcers or patches, which are red, bleeding areas on the bladder wall.⁣

I’m also among the around 5% of IC patients have persistent symptoms for more than 2 years and 5% of patients have end stage disease defined as very hard bladders with low capacity and terrible pain. Many of these patients also have Hunner’s ulcers.⁣

The exact cause of interstitial cystitis (IC) remains a mystery. Many researchers believe a trigger may initially damage the bladder or bladder lining, and ultimately lead to the development of IC. It is thought that this damage to the bladder wall then allows particles in the urine, such as potassium, to leak into the bladder lining. Once these particles get into the bladder lining, they lead to responses such as chronic nerve pain & more damage to the bladder. ⁣

IC may have shaped my life & me but it does not define me 💚

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